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Thank you for helping us make a difference!

To date the Foundation has sponsored fourty research grants worldwide committing over $8 million. These research projects have been funded through the following institutions:


  • The Canadian Society for Mucopolysaccharide & Related Diseases Inc., Vancouver, BC

  • Hospital for Sick Children, Toronto, Ontario

  • University of British Columbia, Vancouver, British Columbia

  • Women’s and Children’s Hospital in North Adelaide, Australia

  • University of Victoria, Victoria, British Columbia

  • Central Manchester & Manchester Childrens' NHS Trust, Manchester, England

  • Hospital Sainte-Justine, Montreal, Quebec

  • University of California, Los Angeles, California, USA

  • University of Georgia, Atlanta, Georgia, USA

  • Université de Montréal, Montreal, Quebec

  • Iowa State University, Ames, Iowa, USA

  • University of Florida, Gainesville, Florida, USA

  • Nationwide Children’s Hospital, Columbus, Ohio, USA

  • Telethon Institute of Genetics and Medicine, Napoli, Italy


These research projects have lead to important findings with papers being published in a variety of scientific journals along with major presentations at medical and genetic conferences worldwide, current clinical trials, and establishing research labs dedicated to Sanfilippo research.  

Thank you for your generous ongoing support which enables these projects to happen. 96% of every dollar donated has gone to support research.  Below are the current research projects we are supporting.  Please click researcher's name to check out their research initiatives.


TODAY’S research will lead to TOMORROW’S treatments!

Current Research Projects & Grants

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