Welcome
to our story of family, of faith,
of sacrifice, and of hope
Although Elisa Linton appeared completely normal at birth, she was diagnosed at the age of four with a rare genetic disorder called Sanfilippo syndrome, MPS lllB, for which there was no cure or treatment. Elisa lived to the miraculous age of 22 but Sanfilippo syndrome sadly claimed her life on October 31st, 2016. Her legacy lives on and continues to bring hope to other children and their families......
The goal of our Foundation is to fund medical research to find a cure for Sanfilippo syndrome and its related neuro-genetic disorders.
Book Launch - June 2026
We’re excited to announce the launch of Randall Linton’s book:
This Little Light of Mine: A father’s memoir on his daughter’s short but deeply significant life.
Please join us to celebrate the release of the book, enjoy refreshments, hear some inspiring and heartwarming stories, reunite with Randall and his family, reconnect with other SCRF supports, and purchase your copy of the book for $25.
Saturday, June 13th - 10 am - 11:30 am
OR
Thursday June 17th - 7 pm - 8:30 pm
Spring Garden Church
112 Spring Garden Ave., North York, Toronto
To RSVP to attend either Book Launch date click here
If you cannot attend, the book is also available now:
1. Through the SCRF for $25 per copy, no HST
2. It is also available on-line via Friesen Press, Indigo, Amazon,
Barnes and Noble for a slightly higher price plus tax.
All proceeds will support medical research through
The Sanfilippo Children’s Research Foundation.
Please share this invitation and bring your friends!
Who We Are
The SCRF is a grassroots charity in Canada that is solely run by volunteers. No Fundraising companies are used. We are proud to say that 96 cents of every dollar donated since it's inception in 1999 has been contributed to research.
The goal of our foundation is to fund medical research into Sanfilippo syndrome and it's related neurogenetic diseases.
Our Sanfilippo community has gown over the years as more children in Canada have been diagnosed with Sanfilippo syndrome. We are thankful for these families who have come on board and raised funds on behalf of The SCRF in honour of their children. We are also grateful for the faithful and generous donations we've received from donors like you that has brought research and understanding of Sanfilippo syndrome to where it is today. Thank you!
Videos
All Videos
The Tale of Elisa Lou Who 2016 - Elisa Linton
2016 SCRF Gala Video - A Living Legacy
2014 SCRF Gala Video - Elisa's Gang
Contact
The Sanfilippo Children's Research Foundation
41 Gwendolen Ave. Toronto, Ontario Canada, M2N 1A1
416-223-1911