Welcome
to our story of family, of faith,
of sacrifice, and of hope
Although Elisa Linton appeared completely normal at birth, she was diagnosed at the age of four with a rare genetic disorder called Sanfilippo syndrome, MPS lllB, for which there was no cure or treatment. Elisa lived to the miraculous age of 22 but Sanfilippo syndrome sadly claimed her life on October 31st, 2016. Her legacy lives on and continues to bring hope to other children and their families......
Book Launch - June 2026
Click above link to hear interview with Bill Carrol on CRFA Ottawa July 2026
We’re excited to announce the launch of Randall Linton’s book:
This Little Light of Mine: A father’s memoir on his daughter’s short but deeply significant life.​
$25 per copy​
Please contact us to order your copy through the SCRF, no HST and more money is raised for research. We can arrange pick up with you however, if you require us to mail it, the cost is $21.50 to anywhere in Ontario for up to three books. Click here to contact us
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It is also available on-line via Friesen Press, Indigo, Amazon, Barnes and Noble for a higher price plus tax.
All proceeds will support medical research through
The Sanfilippo Children’s Research Foundation.
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Please share and thank you for your support !
Who We Are
The SCRF is a grassroots charity in Canada that is solely run by volunteers. No Fundraising companies are used. We are proud to say that 96 cents of every dollar donated since it's inception in 1999 has been contributed to research.
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The goal of our foundation is to fund medical research into Sanfilippo syndrome and it's related neurogenetic diseases.
Our Sanfilippo community has gown over the years as more children in Canada have been diagnosed with Sanfilippo syndrome. We are thankful for these families who have come on board and raised funds on behalf of The SCRF in honour of their children. We are also grateful for the faithful and generous donations we've received from donors like you that has brought research and understanding of Sanfilippo syndrome to where it is today. Thank you!
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Videos
All Videos
The Tale of Elisa Lou Who 2016 - Elisa Linton
2016 SCRF Gala Video - A Living Legacy
2014 SCRF Gala Video - Elisa's Gang
Contact
The Sanfilippo Children's Research Foundation
41 Gwendolen Ave. Toronto, Ontario Canada, M2N 1A1
416-223-1911